I am not dicking with you when I say that Cash has now officially eaten AT LEAST $156 worth of cloth g-tube pads in the first 22 months of his life. (SO GRATEFUL for Scott, our babysitters & nurses for stepping up & helping share this responsibility with me now -- Don't know what I'd do without you guys!!!)

I'll do my best to recount, with more apologies, of course. It was different from a normal poo in that it had a defined D-shape. Omfg I can't quit laughing. He was the coolest dad, so interactive, so patient, so loving, SO FREAKIN' FUN! Behold the video that has made me laugh-so-hard-I-maybe-peed more times than I care to admit!

They were supposed to be in the hospital Oh, and did you SERIOUSLY use the smallest rollers we had? My most recent bloggi... You're welcome in advance for not sharing every single one of my completely-fucked-up-to-the-point-you-would-be-concerned-for-my-actual-... People often reach out to me shortly after they have a child with special needs. night. They kept stealing looks at each other, almost like, "Hey girl, nice tiara!" Playing with it like a damn toy?!

was brutal and frustrating and draining for both of us. Why yes, Daddy & Lola *are* up to their usual antics! behavior” and that a huge majority of kids who have brain abnormalities simply It wasn’t until Claire started solid foods (organic, raw, fresh bananas and

F'in A. I barely know where to touch, what to try to remove, it's all a clusterf***. needs is this: None of this was supposed to happen. I prayed she would be She is quite literally the strongest human being we have ever known. The world is such a better place because you are in it. I remember them telling me how it wasn’t that abnormal for while it seems invasive and scary, honestly isn’t that big of a deal. To all the families out there who just had a child with special needs... YOU GOT THIS. Sleepy girl getting some beauty rest before her big night! WET. Was he purposely taking me to Browntown? World's Smallest Ninja! What ensued after this moment is but a blur to me now... a frightening blur. Five and ten years ago, our family was forever changed. Possibly my favorite pic of Claire with her Daddy EVER. ", I panic. I'm lucky AF, you guys.

All Rights Reserved. Copyright © 2011 Gwen Hartley. This basically means they are ultra retarded, can't walk, talk, or even move their tiny limbs in any useful way. I will

Five and ten years ago, our family was forever changed. Maybe even happier in this outfit than her previous adorable one. In lieu of flowers, memorials can be made to the Ronald McDonald House, 551 N Hillside St Suite 100, Wichita, KS 67214.

Months will pass with no offenses, then other times, 3 are sacrificed in a span of 2 days (like this week). ), then I would use ~Jack Beauregard, Tuesday, October 11, 2011 at 10:57:00 AM CDT, Tuesday, October 11, 2011 at 2:19:00 PM CDT, Tuesday, October 18, 2011 at 3:29:00 PM CDT, Wednesday, October 26, 2011 at 5:28:00 PM CDT, Friday, January 27, 2012 at 8:41:00 PM CST, Thursday, March 29, 2012 at 10:43:00 PM CDT, Tuesday, March 25, 2014 at 6:32:00 PM CDT, Sunday, January 25, 2015 at 2:36:00 AM CST, Monday, December 7, 2015 at 4:37:00 PM CST. Her body systems shut down, possibly.

It was wayyyy browner & poopier looking in person.

Plus how far does his pooper have to stretch to get that thing out? Picture Window theme. The Hartley Hooligans are a pair of sisters, Claire and Lola Hartley, born with microcephaly, a medical condition which is signified by a head circumference several standard deviations below the average. We love all of you. We need to divide the clothing into TWO bags. matter what I tried, this happened every feeding, maybe 8-10 times a day.

OK, so somehow, Polly Ann Pocket, all 9-10 whopping pounds of her, managed to defecate in her diaper in such a way that it not only filled the diaper itself & perhaps slightly escaped one or maybe even both leg holes... but instead she magically channeled this effortless, non-straining poo out a SINGLE leg-hole with such velocity and force that it actually was bubbling out through her darling, boutique sweater pants onto my hand and jeans and a burp rag in the general vicinity of this caca.

Don’t get me wrong, we have struggles beyond what Claire was shocked to see that her brother, Cal (& his girlfriend, Kerby). I was bound and determined to breastfeed her. Picture Window theme. At some OMG!" accidentally aspirated into their lungs will make them sick with pneumonia. You gu... *NOTE:  PLEASE SHARE THIS BLOG POST!!!!!

She could have left so many times over the course of her 13.5 years, and every single time, she chose to stay.

Sitting in church when my Princess Jaydyn decided to let out the LOUDEST noise you could ever imagine! We are in complete disbelief and shock that we are here again just shy of 10 months after losing Claire. aspiration pneumonia, and this would cause lung damage and scar tissue. had made a surprise appearance on her special night! I found myself

Claire is probably the

<3 www.thehartleyhooligans.com <3 "There is only one happiness in life -- to love and to be loved." The DJ was slaying, the videographer was capturing everyone dancing & projecting it onto a huge screen, and the rest of us were gettin' down with our bad selves!

They told me that somewhere between age 1-2, the suck-swallow reflex turns into a “learned Both looked simply stunning. I question, "Cal, did you fart? It has a traaaaaaaaaain!!!!! I was determined to optimize their I knew she needed more liquids, so I would add an ounce or so of her It isn't a secret that Us Hooligans have been MIA lately, and for the first time ever, I am perfectly OK with it. You're welcome. It just seems utterly impossible at this time. I get close enough to realize that it is brown and stinky like. Yes. Classic positioning having Claire's feeding pump in the background. Luckily I had brought everything I needed for the situation (wipes, spare full change of clothes, gloves, and even an immodium!

IN. SO VERY  MUCH. They will not be able to swallow effectively anymore, and the fluid that is That shit was POWERFUL, yo!

Clementine has vomited up some ugly stuff that smelled poopish. Then somehow miraculously passes them, On a side note, and I seriously cannot figure this out to save my ass... why then, after eating them on the DL without me knowing, did CaCash (see what I did there?!) long. Lmao quietly so I don't wake my hubby. It isn't a secret that Us Hooligans have been MIA lately, and for the first time ever, I am perfectly OK with it. OMG you guys, my girl is a stunna!

We had a g-tube about doing so. After having Lola, these words echoed in my head once again. The Poop Taco Ok, so today I walk into the only carpeted room of our house upstairs to find what appeared to be a taco-shaped turd laying next to the changing table. Just finding your blog...3 years after the fact but this post is beyond funny. Thanks so much for the laugh my face hurts my tummy hurts and I think I got a little tea on my keyboard and monitor.Yes yes yes I am taking great pleasure from that moment of misery!Love you guys!

The questions outweigh the answers.Jeanie, Jeanie - I lightened the pic with a photo app so I could see which pads were lost. decide to then pick up the poopoo taco in his mouth and bring it BACK IN the house to show me what he had done?

full potentials no matter what. developmentally or even have vision.

lives and “save them” from their grim prognoses. &*#$!!!!!

We were told they had a party bus as well as a limo in which the attendees could ride around the large parking lot, so we decided to brave the bitterly cold weather & winds to check it out! And there is no grass in his pee/poop area - just concrete & rocks so Scott thinks it could have blown in from yard & stuck to it because our son just mowed.

What the F is going on then?!??!? PS -- The brilliant combo of OT + hours of primping = CHECKMATE, yo. We were cracking up at their reaction to one another! Crikey, I'm a nurse and I thought WE had the corner on the market of shit soliloquies. I've only recently found your blog and I love it. But all that being said, I love this goofball. She too fought REALLY not good.

It would have to do, as I didn't have back-up jeans on hand, dammit. Fast forward to a few months before Lola’s birth when we found out Total perv status for both whippets. They told me the warning additional IQ point I could maybe provide for her & also longed to connect Licking it repeatedly like a poopsicle???

Oh yes. she would be able to continue to nurse/drink from a bottle/eat off a spoon for ...and Lola was the mayor!so funny!I don't know you but I love the way you share your life and write this blog! The music was blaring, the ceiling lights were flashing and changing colors, and SHE. Is she sick? Cash was flat-out. Yep. Karma, babyyyy.

I'm not sure who was having more fun that night -- Claire, Scott or me! We promised her we would never again let her get dehydrated. REALLY?!?!? Was it brought back in for spite or as a trophy of honor? Chronic dehydration is no joke. Nausea in waves. I am not gonna lie, I contemplated trying to salvage the pads. That must be it.

I'm gonna have to bookmark the American Girl website now for Mrs. Pocket. Literally that raspy can't get enough oxygen so I sound like a three pack a day smoker. Monday, December 01, 2014.

I don't even flinch. Kids are darling! Hi: Your dear daughters are such good sports and seem to enjoy the antics and the attention, what sweethearts-never a dull moment in your life Id guess- and they are very photogenic. "Totallyyyyy. I'm happy to report that we made it with 1 minute to spare! Me & Pocket  ~  3.29.17 HEY, GUYS! One that is only partially soiled, and one that is completely drenched in warm, As soon as the clothing was completely removed, I tackled my jeans/lap skids with a baby wipe, only to smear it in further, I'm sure, but at least most of the stain was "gone." And not just any prom... she went to the.

Has she been really fussy? The black pirate/skulls one was another fave, so suffice it to say Cash is currently topping my Shit List. To our relief, it was about 85 degrees inside the limo with the heater on blast, which our Mimi LOVED! Instantly I smell poop.

bottle to be sure she got enough.

Her body was overcome by back-to-back viruses as well as other medical complications that she was not able to overcome. OMFG...this is friggin classic! We are completely devastated.

flat EVER, due to her severe reflux. I will luckily only bless you with the view from the outside... observe shit stains/fecal matter from hell smeared all over the inside of the bag... ewwww. Greeeeeeat.

Let's ditch these losers!"

HEAVEN!!! from. HA!) My apologies!!! I threw them into the trash like a fucking boss and ran for the sink in case I hurled. SO appreciate all who came before me carrying buckets... You guys saved. It She fought with everything in her to stay. I'm so screwed. lifesaver for Claire, I did sort of feel like we lost one of the last healthiest member of our family. All Rights Reserved.

ight as I was feeding Lola her bottle, I remembered with her any way possible. It was so visually stimulating, and we enjoyed watching our girl take it all in, feeding off her happiness & delight.

Lastly, thank you, Tim Tebow, for ALL you do for individuals like our Claire. The Hartley Hooligans are a pair of sisters, Claire and Lola Hartley, born with microcephaly, cerebral palsy, dwarfism, epilepsy, and tons of other conditions. Necessary for this Mama's peace of mind!!! When they come out of the dryer, we are on lockdown to prevent theft by whippet. It was decorated SO beautifully inside... much more exquisite than we ever expected! big sister, and she seemed to get sicker more often than Claire also. Early this morning, with a full moon shining in our PICU window, our sweet Lola ascended into the Heavens to be reunited with her big sister, Claire. Check out Claire's sparkly Chucks! It isn't a secret that Us Hooligans have been MIA lately, and for the first time ever, I am perfectly OK with it.

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